atient compliance and disease management in the treatment of psoriasis in the Netherlands.
Type:Uv phototherapy Time:2017-10-11 10:36:32atient compliance and disease management in the treatment of psoriasis in the Netherlands.
BACKGROUND:
Compliance behaviour and disease management are important issues in chronic skin diseases. Psoriasis patients are
'experts by experience' because of many years of treatment. Therefore, it is relevant to gather data from patients on
the actual use of antipsoriatic treatments.
OBJECTIVE:
The following questions are addressed: (1) What is the present mode of prescription and actual use of antipsoriatic
treatments, including topical treatments, photo(chemo)therapy and systemic treatments? (2) What information do
patients expect from their doctor, and do they actually receive this information.
METHODS:
To answer these questions, a questionnaire survey was mailed to the subscribers of Psoriasis, the journal of the Dutch
Psoriasis Patients' Organisation.
RESULTS:
(1) Major issues in the treatment of psoriasis are (a) long-term management, (b) control of mild, moderate but also
extensive psoriasis and (c) control of psoriasis on difficult localisations. Patients perceive itch, scaliness and
visibility as major criteria for efficacy. (2) Topical treatment is the mainstay in the management of psoriasis.
Calcipotriol is the most prescribed drug. Photo(chemo)therapy has an intermediate position between topical and
systemic treatments. UVB is prescribed more than twice as frequently as PUVA and 10% of the patients on photo(chemo)
therapy proved to be treated with UVB at home. Only 16% of the patients were on a systemic treatment; methotrexate and
acitretin were the most frequently used systemic treatments. (3) More than 70% of the patients indicated that they had
taken part in the selection of a treatment. In general, the patients were satisfied about the contact with their
dermatologist and general practitioner. Compliance with the duration of treatment is limited, especially with regard
to topical treatment. Patient compliance with the dose of the treatment is better. Again compliance is the worst in
topical treatments. (4) Patients have a strong preference for an effective treatment which is safe for long-term use.
Only a minority of patients wants a fast clearing treatment.
CONCLUSION:
Itch, scaliness and visibility provide the most relevant information on the severity of psoriasis, as the patients
perceive themselves. Treatment duration is often unrestricted, especially with regard to topical treatments, which
implies that the cumulative toxicity potential of these treatments may have a serious impact on their safety profile.
Patients regard it of importance to have a vote in the selection of the treatment and regard safety as more important
than fast clearing.
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